Sam is 8 years old. He loves school,
playing football, going on his scooter
and running about in the park with
his brother, sister and dog. If he had
his way he’d have sausages and ice
cream every mealtime! When Sam was
a baby he was diagnosed with a rare
genetic condition called Niemann-Pick
Type C. It’s a fatal neuro-degenerative
condition with no cure. Most children
with NPC don’t make it to their teens.
NPC makes Sam unsteady on his
feet, fall often, and makes his speech
sometimes difficult to understand.
It will eventually confine him to a
wheelchair, unable to move, talk or
eat.
We are doing everything we can to
help Sam now – to make each day
filled with love and laughter. And
we are working with doctors and
scientists to try and get him access
to therapy that may slow down the
effects of NPC – and maybe just give
him enough time until a cure is found.
On Shop Carterton Day Darcy Bear
and Fit Figures raised £82.75. Here
are a couple of other upcoming
fundraisers.
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